This was sadly not one of those better days. I do find myself getting very tired all too easily. The fact that the day was quite warm and humid probably didn't help.
I got e mails from both the Upper GI Nurses both saying the same thing. It is, they say, important to have all three sessions because a CT scan before that is not reliable when it comes to judging whether the tumour has either grown or shrunk. From that I assume the information when the scan took place would affect decisions about the operation or not. In the meantime I continue to have swallowing problems.
For an independent view I contacted a support group help line in Birmingham. I spoke to a very pleasant woman called Dawn. She also urged me to have the third session of chemotherapy. She listened to the timetable of things to happen to me and said that that was the way things were done and that in her experience the three sessions gave the best chance for the operation to be a success. Dawn confirmed what we had already been told namely that Southampton Hospital provided very good care for this kind of treatment. She had had no complaints about them.
We went on to discuss the after effects of the operation. Dawn was inclined to think a full recovery would take 12 months. It would take 8 weeks after discharge before I started to notice improvements. She offered to send some literature to us.
Thus it looks like after my week off it's back to the needles and pills a prospect which does not exactly fill me with joy but if it's got to be that way let's get on with it.
On a happier note our Granddaughter Emily got top marks in all subjects covered by the Sats tests. For non British readers these are tests given to 7 year olds the aim of which is officially to let parents know what standard their child has reached. A more accurate view is that they test the teachers.
No comments:
Post a Comment