Well it is back to 1 step forward 1 step back. It all started so well when we got off the Red Jet in Southampton. The Daisy Chain bus, funded by the Wessex Foundation, was at the terminal. The driver had some empty seats and agreed to take us to the hospital. We met Charles and Jess when we got there and went up to the ward where we found David going for a short walk in the ward. However when he sat down he looked quite agitated and very fidgety. He enjoyed his visit with Charles and Jess but after they left he seemed to be quite down and kept drifting in and out of sleep. When he was in a doze he would suddenly jump and try to catch a newspaper or say he thought he was in an aeroplane. The pain relief nurse, who I know from my Barbershop Chorus came by and I had a word with her. She said she would change his pain relief drug to a different one and it might reduce the side effects but she couldn't guarantee that it would.
I managed to have a couple of short chats with David and he was admitting to being very fed up, not surprising really, and despite been told it didn't matter how many times he buzzed through the night for a bottle, he felt guilty about doing it. I guess he will never change, he is so nice. He also admitted that he was worried he was losing his marbles because his concentration span was so short. He knows that the pain relief drug is probably responsible for this but it is the long term damage he is worrying about. I suggested to him that if he is so worried about this he should talk to the doctor about it to get some advice and reassurance. I could say to him drugs, lack of sleep, boredom etc but I know him well enough to know he would listen and remain unconvinced.
So folks we plod on hoping for better things and bucket loads of patience in the hope that the set backs are less and less until he can come home and convalesce.
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